Did ya think I fell off the face of the earth? It sure has been a harried start to our New Year. Steven and I are the caregivers for his mother. She has MG (What is myasthenia gravis (MG)? Myasthenia gravis (pronounced My-as-theen-ee-a Grav-us) comes from the Greek and Latin words meaning “grave muscular weakness.” The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. To learn more click here. – See more at: http://www.myasthenia.org/#sthash.VCnEG6G4.dpuf). She has been living with MG for 13 years now. I have never mentioned this before, why you may be asking?
Why? Most importantly, this blog was my stress outlet! I now have less time to take creative adventures with Steven. His mother now doesn’t have the ability to basically walk anymore. So I am busy with her care, infusion treatments, and appointments. I will be honest and tell you flat out….. I struggle with resentment, guilt, and depression. The brunt of the responsibilities fall on my shoulders. I have been very lucky to have a boss who’s been wonderfully accommodating, rearranging my hours as needed. Now you know why “pity parties” infuriate me so much. I try not to dwell on the negative, but push, reach, strive, and claw for the positive every day. Not always successfully, but life does present us with these types of journeys. It is how we handle ourselves during these side trips that really show us our strengths and weaknesses.
In the time to come, I will be posting less when times are tough and more when there is time for Steven and I to work on another project. This journey is not an isolated one. So many others have even tougher journey’s to struggle through. We are all supported by our children, families, friends, even co-workers. Thank the good Lord for that! For without them we wouldn’t be able to show weakness and gain strength from their support. Display anger and guilt, only to have it dispelled by their love and understanding. To be brought out of depression by their ability to make us laugh at ourselves, and hold us while we cry.
Thank you for just listening! As always, Cyn